But, if you are a
researcher like Dr. Miller, Dr. Plioplys, Dr. Klimas, or in any major university, you are
paid by your university to do research that you have received grants for. Now, what we
need to do is create the ability through the NIDS Board and MAT so that we can provide
funding. So that we can pull into this the kind of expertise that says, OK, what
virus is going on in your children; what is happening with their immune system; what do we
do to change it. The difference in that is that if you look at our research
establishment, they keep studying little pieces, and little pieces. And, one day
theyll get there. Standing up here right now, it has become all too safe to say to
you that if none of what Im presenting tonight succeeds, then 7 years from now, 10
years from now, youll see this happening because eventually our system will get
But what we need to do is create something that has never been done before. We need to
bring good academic people together, bring good educators together, bring good therapists
together and say we have a problem how do we solve it, not how do we study it.
The NIDS Board was not picked at random. These are researchers who each bring into it a
very unique perspective. Again, there are many good researchers in our country, but unless
they understand this phenomena or know what theyre trying to do, we would be fishing
around for a long time.
Dr. Klimas has worked with the immune system, has worked with the idea of Chronic
Fatigue Syndrome for 15+ years. Dr. Bruce Miller is renowned in adult neuroanatomy,
neurology. His knowledge of the NeuroSPECT scans, his knowledge of the brain is
unbelievable. Dr. Mena may be a major key to everything.
If youre going to try to bring pharmaceutical companies in to look at your
children, your children are always last in line. If you listen to Washington, President
Clinton, youll hear they are trying to get the companies to look at children.
Theyve always been afraid to look at children because children are a major medical
liability to deal with. So, if were going to get a pharmaceutical company to ask how
do we help these children, weve got to be able to tell them that we can give them a
way to show what an agent does and to validate what its doing.
To be frank with you, and again, I hope that this will evolve into something
thats never happened before, Dr. Mena has a database. We are not interested in
publishing an article every year for the next 5 or 10 years and having our names in print.
Dr. Mena is looking to see if we can set up research centers with, literally, NeuroSPECT
scanners around the world. They can be linked by satellite to Chile. Theyre read
into the database. And we can change clinical medicine objectively, creatively, if done
Dr. Plioplys is a pediatric neurologist who was doing studies on the immune system and
autism 10 to 15 years ago. If you think Im frustrated, you should listen to Dr.
Plioplys talk, How he has watched money get thrown year after year after year into the
same areas with no results. Nobody has really focused it where the problem is.
Project 1999, as alluded to, is our way of trying to say that we want to give all of
you a target that we can put together existing expertise, existing technology and create
an answer for these children. Along with that is the broader goal that I would like to see
us focus educators, speech pathologists, OT people, and PT people who have an interest and
the knowledge on the best way to rehabilitate your children - not train an autistic child.
How do you rehabilitate your child.